Barth Syndrome Foundation

Mission

Saving lives through education, advances in treatments, and finding a cure for Barth syndrome.

Vision

A world in which Barth syndrome no longer causes suffering or loss of life.

About

Working together we are making a difference in the lives of children and their families. One day there will be a cure; we hope you will help us make that day come sooner.

• Raising awareness among physicians, scientists, and the general public;

• Supporting relevant research through an international grant research program;

• Providing a caring and educational community for affected families; and

• Hosting a unique information resource.

“Working together we are making a difference in the lives of children and their families. One day there will be a cure; we hope you will help us make that day come sooner.”