HUG Media Channel
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HUG Media Channel •
Hearts Unite the Globe is happy to present a media guide for the congenital heart defect and bereaved communities.
CHD Podcasts & Resources
The CHC Podcast
Are you ready for a podcast that features conversations between members of the congenital heart defect community? The CHC Podcast: Congenital Heart Conversations takes members of the congenital heart defect (CHD) community, and brings them together to discuss topics of importance and to share stories. The podcast features a variety of hosts and producers which makes each episode unique and fun to listen to. Most of the episodes are Town Hall Meetings where volunteers, patrons, and experts come together to have real conversations.
Diaries of a Heart Warrior
Hosted by Amy Erhart
I'm Amy Erhart, the host of Diaries of a Heart Warrior; born with a Congenital Heart Defect (Hypoplastic Left Heart Syndrome-HLHS). I'm creating this podcast to bring you stories told by individuals living with a Congenital Heart Defect. Episodes will also include the parent(s) point of view on how it felt to receive the diagnosis of their child; what they wish they knew and what life looks like now. Let's take a journey and explore the lives of Heart Warriors as the stories are told from their perspective.
From the Heart
Hosted by Heartkids
Join us on From the Heart as we explore stories of people impacted by congenital or childhood heart conditions. We’ll tackle the big issues – what it’s like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. We’ll also talk to cardiologists and experts. This show is for anyone impacted by CHD. From the Heart is brought to you by HeartKids. Your hosts are Rachael Knowles and Sam Stolberg, two young Australians who live with CHD.
The Heart Community Collection
We are a collective of CHD authors and creatives who have joined forces to bring resources to the CHD Community. In our resource center, founded by Anna Jaworski, Jenny Muscatell, and Amy M. Le. You will find a wide variety of reading materials, from children's books to memoirs and educational books to cookbooks on healthy living.
The Heart Dialogues Newsletter
By Leigh Kamping-Carder
The Heart Dialogues is a newsletter for people born with heart conditions (and the people who love them). Longtime journalist Leigh Kamping-Carder, who has tricuspid atresia, interviews members of the CHD community about what it’s really like to live with a congenital heart condition—not just the medical stuff, although that’s important, but also the ways that CHD can transform lives, for better and worse, in big and small ways.
Heart to Heart with Anna
Hosted by Anna Jaworski
Heart to Heart with Anna is the longest-running podcast devoted to the congenital heart defect (CHD) community. Our shows feature Survivors, family members, medical professionals and others in the CHD community who wish to share their stories, expertise, and advice. This show is devoted to empowering, educating and enriching the lives of members of the CHD community. This weekly podcast is hosted by Heart Mom, Anna Jaworski.
Hope & Courage
Hosted by Tom & Kat Hansen
Hi, we're Tom and Kat Hansen! In 2014 our son Harding was diagnosed with Congenital Heart Disease, and since then we've experienced the ups and downs that come along with being a CHD parent. In this podcast we share some of the lessons we've learned along the way, and the things we wish we knew at the start of our CHD journey. We also talk to CHD experts to get their stories of hope, encouraging insights, and valuable resources to give parents like us the right help at the right time.
Imperfect Heart
By Jeff Holden
Imperfect Heart is a podcast designed for, hosted by and recorded with those affected by or involved with the care and support for those with the birth defect of a Myocardial Bridge. Interviews with healthcare professionals, support professionals and those navigating their way through the often challenging process of diagnosis and treatment are the focus of the content. It’s their stories that are meant to inform, educate and even entertain in an effort to insure hope for the listener that what they are experiencing is real, that they are not alone and that there is hope for relief from the varied symptoms of a Myocardial Bridge.
Nola Hawts
By Lana Stevens & Susan Aucoin
Topics related to Congenital Heart Defects and resources available to people who are affected by CHD. We can't promise that we won't get side tracked along the way though. Also, full disclosure - we are not professionals. It's all about survival, CHEERS!
Open Heart Surgery with Boots
Hosted by Boots Knighton
Formerly called The Heart Chamber Podcast, Open Heart Surgery with Boots airs every Tuesday for conversations on open-heart surgery from the patient perspective. Boots Knighton explores the physical, emotional, mental, and spiritual experiences of surgery with fellow heart patients and health care providers. This podcast aims to help patients feel less overwhelmed so you can get on with living your best life after surgery. You not only deserve to survive open-heart surgery, you deserve to THRIVE!
Pediheart
Hosted by Dr. Robert Pass
Pediheart: Pediatric Cardiology Today is a review of the latest literature and thought leaders in pediatric cardiovascular care. Robert H. Pass, MD: Appointed Division Chief of Pediatric Cardiology, Co-Director of the Children’s Heart Center, and Director of Pediatric Electrophysiology, The Mount Sinai Health System.
Whole-Hearted
By Jenny Muscatell
Congenital heart disease, faith, and the questions that don't get asked. Whole-Hearted with author and LSW, Jenny Muscatell, brings you insights and discussions with guest speakers for ten-minute segments of inspiration, faith, and real talk. Tune in Live Mondays at 10:00pm EST on Christian Mix 106. Produced by Jenny Muscatell and Christian Mix 106 - where you will hear four decades of the best mix of christian music, devotionals, talk and podcasts.
Podcasts for the Bereaved Community
Bereaved but Still Me
Hosted by Michael Liben
Bereaved But Still Me is a podcast for the bereaved community. Our Host, Michael Liben, is a bereaved father and son. Our Producer is Nancy Taylor Jensen, who is a bereaved mother. Loss and bereavement are part of the human experience and our podcast aims to talk about the topics people seem afraid to broach. Our monthly program has been designed to empower, educate, and support the bereaved community. New episodes are broadcast every 1st Thursday of the month.
Grief, Gratitude & the Gray In Between
Hosted by Kendra Rinaldi
This podcast is about exploring the grief that occurs at different times in our lives in which we have had major changes and transitions, that literally shake us to the core and make us experience grief. I created this podcast for people to feel a little less hopeless and alone in their own grief process, as they hear the stories of others who have had similar journeys.
Haven
Hosted by Jen Burgard
Through love and loss, Haven works to make a difference by building a community of support for parents who have endured the tremendous loss of a child. We want to be a catalyst for change, and since beginning in 2017, we’ve been driven by the same ideas we initially founded our non-profit organization upon: hope, healing, and support. Learn more about our mission, our vision, and the impact we are making.
The Haven community is here to help you through.
The Joyful Mom Podcast
Hosted by Megan Hillukka
Hi I’m Megan Hillukka. A Grieving mother, turned grief coach, I now support, guide, and offer tools to navigate the unthinkable of child loss to other moms who also know this pain. I help you go from feeling empty, lost, and broken, to learning to carry your grief and live alongside it. If there’s one thing I want you to see, it’s hope. Hope that there’s life after loss, hope that there’s so much more for you, and encouragement that you are normal. All of this is possible, along with never forgetting or moving on from your baby or child. I’m holding onto hope for you, until you are ready to hold it yourself.
Losing a Child
Hosted by Marcy Larson, MD
When pediatrician mom of three, Marcy Larson's 14 yo son, Andy, was killed in a car accident in 2018, she felt like her life was over. In many ways, that life was over, and a new one forced to begin in its place. Come alongside her as she works through this journey of healing. She discusses grief and child loss with other grieving parents and those who work to help them in their grief. This podcast is for grieving parents and well as those who support them.
The Selfish Griever
Hosted by Whitney Samorano
My son, Orion, was gone too soon. And in my grief, I felt like there was something missing, something more. Despite being told to stop searching for answers beyond the Bible, I followed my heart and found a deeper connection with the universe, the angels, and my son. The Selfish Griever was born as a safe haven for grieving parents seeking spiritual support. Join our community of like-minded individuals and spiritual experts. The universe brought you here for a reason, it’s no coincidence.
Where’s the Grief?
Hosted by Jordon Ferber
Where’s the Grief is a weekly podcast about loss and grief in everyday life that somehow manages to be consistently funny, surprisingly insightful and easily absorbed. It’s a show that isn’t afraid to face some of the most difficult questions of what it ultimately means to be human, while finding the ever-present comedy in our day-to-day truths, and some of the things we all fear.
Other Affiliate Programs
Everyday Miracles Podcast
Hosted by Julie Hedenborg
Welcome to the Everyday Miracles Podcast, where real life stories of hope and inspiration are shared. Everyday, miracles are happening all around us, yet we rarely hear anything about them. Why is that? I’m Julie Hedenborg. I have committed my time and energy to bring these stories to you, including some of my own personal experiences. My hope is that you’ll be impacted the same way I was. Join me in my journey to inspire change in a world that so desperately needs it.
Archived Programs
Fontan With a Future
Hosted by Taylor Wesley
My life, like the lives of so many people living with congenital heart defects, is a medical miracle. For decades, Fontan and single ventricle patients were consigned to permanent sickness and disability. But today, thanks to advances in medicine and surgery, patients like me can not only enjoy life, but hope for the future! This podcast is created by a person with congenital heart defects for the CHD community and anyone interested in stories of medicine, perseverance, and hope. Join me, Taylor, as I share about life with a single ventricle, my journey through medical training, and important information all heart warriors should know.
Guerreros del Corazón
Hosted by Marta Montero and Belen Blanton
¿Qué es Guerreros del Corazón? Es un podcast dirigido a la comunidad latina de Cardiopatías congénitas. Sus anfitrionas son dos mujeres que viven muy de cerca las cardiopatías congénitas. Marta Montero, puertorriqueña, tiene un niño de 11 años con varias cardiopatías. Belen Blanton es venezolana, establecida en Estados Unidos y nacida con una cardiopatía congénita. Luego de ser invitadas al programa Heart to Heart with Anna de Anna Jaworski, pasado unos años a petición de Anna, surge la idea de realizar un podcast en español, en beneficio de la comunidad latina. Esperamos que nuestro programa sea de beneficio para toda la comunidad latina alrededor del mundo y que se siga conociendo y concienciando sobre las cardiopatías congénitas. Nos escuchamos pronto, y agradecemos su apoyo!
Hartfelt
Hosted by Jennifer Hart Mulder
Hartfelt: Living Life with Congenital Heart Disease (CHD) is a podcast written and produced by someone with severe/complex CHD, to help other people with CHD, their families and friends, and the general public better understand congenital heart disease.
Heart to Heart with Nicole and David
Hosted by Nicole Vickery and David Franco
Heart to Heart with Nicole and David was a monthly interview-style podcast featuring Heart Warriors David Franco and Nicole Vickery. Sadly, David Franco passed away on March 12, 2020. David was also a Producer and Sound Engineer for Heart to Heart with Anna and is terribly missed by the HUG Family. Heart to Heart with Nicole and David, was a one-of-a-kind podcast hosted by two adult CHD Warriors. Nicole and David discussed topics of interest with other adult warriors in this mini-series.
Not a Perfect Heart Podcast
Hosted by Mary Rouzer DNP-RN-FNP
Not A Perfect Heart Podcast: Discussions for the Heart providing conversations on topics related to mental health, women's health, transition to adult care for congenital heart disease patients, advocacy, relationships, and more is hosted by Heart Warrior, Mary Rouzer. Join Doctor-Ally/Nurse Practitioner Mary Rouzer as she talks to some amazing people from various walks of life about topics everyone is wondering about!
That’s the #Truth
Hosted by Jenny & Daniel Muscatell
Do you like the bottom line? That's the #truth is a show by author and radio host Jenny Muscatell, and pastor Daniel Muscatell, that lets real people get real honest, and always tries to find the bottom line. Produced by Muscatell Ministries.
Unbeatable
Hosted by Margaret Ellis Raymond
Unbeatable is a YouTube channel hosted by Heart Warrior Margaret Ellis Raymond. Margaret was born with tricuspid atresia and she wanted to create a space where everyone affected by congenital heart defects would feel welcome to share their stories and build a community to encourage people to grow in their CHD journey.