Sisters by Heart

Mission

Sisters by Heart provides support, education, and empowerment to patients and families affected by Hypoplastic Left Heart Syndrome (HLHS), and other single ventricle (SV) defects, from initial diagnosis to the Fontan and beyond.

About

Supporting patients and families from diagnosis and beyond.

We are an all volunteer led organization striving to help families dealing with a new single ventricle diagnosis. Our mission expands well beyond diagnosis, providing support, education, and empowerment to patients and families throughout the single ventricle lifespan. We provide care packages to make hospital stays easier and resources to help families better understand the single ventricle journey. All of our volunteers are moms, dads, and patients who have HLHS or other single ventricle defects, and who uniquely understand what you are going through. We are here to help!

“Empowering patients and families affected by single ventricle heart defects.”